So the view from the lounge room today, up at 5am, another joyous sunrise, I am confident, I laid in bed dreaming of getting my phd in colorectal immunotherapy cancer research. given the uncertainty of this illness, i better get moving. I might even save my own ass in the process.
I already have enough matierial for 3 phd's and my nobel prize. Might as well dream big dreams. nothing is impossible. especially beating metastatic crc.
so now, the inflamation cascade that has drawn me back into this life and death challenge.
http://csn.cancer.org/node/259495 the immunotherapy revolution is coming, I have pushed this discussion for years, now its dicussed.
dear smokey, tans, jeff and steve and all cancer patients interested an immunotherapies,
to even have this discussion is a miracle given patient and medical attitudes 2 years ago, even 1 year ago, topics like gcmaf, ne castle virus diseaase ec etc etc were ridiculed. the ridiculers are quiet now, as science and medicine show the clear potential of these therapies. not just my results todate.
immunotherapies represent the best hope for our survival and treatment in conjuction with surgery and chemo and holistic medicine.
just watch this space over the next few months, remember that removab got me a complete repsonse, it will work for others with minimal metastatic disease expressing epcam. these other immunotherapies therapies also offer hope.
the biggest barrier, is money and patient access to these therapies, and with the greatest respect medical arrogance, I have seen this first hand.
I suspect what cuased my recurrence 2 now, it was an inflamatory cascade caused by my port infection. if your
NED and your CRP starts to rise, look for a subsequent rise cea ca199. that was my experience, now I have a battery of tests fromlab4more in germany that can provide a detailed analysis of components of inflamation. these can at least then be attempted, now that did not happen for me this time, but I am researching what inflamatory cytokines disable the tcells and macropages that had given me stability over 4 months.
NED and your CRP starts to rise, look for a subsequent rise cea ca199. that was my experience, now I have a battery of tests fromlab4more in germany that can provide a detailed analysis of components of inflamation. these can at least then be attempted, now that did not happen for me this time, but I am researching what inflamatory cytokines disable the tcells and macropages that had given me stability over 4 months.
no doctors but hallwang will adopt an aggressive anti inflamatory treatment plan, aimed at stopiing the recurrence before it starts in its tracks.
all the immunotherapies in the world wont help if they are being disabled, I am proof of that.
the fact that I have proven removab has curative potential, but that the remission needs to be carefully managed. I at least know the areas to start researching. meanwhile these guys are making efforts in the right directions, but frankly are off target, as removab works, for many and its not being studied.
the above areas will be where I attempt to get my phd. I have been stewing over my recurrence 2 and its implications for future therapies, I am so glad to have a couple of theories at least.
huge improvements are needed in clinical management for immunotherapies to be successful, its very hard work, educating the doctors, but day by day they learn from patients that thrive with these therapies.
hugs,
Pete
PS if anyone is interested in these therapies PM me