the best date and my severe handfoot syndrome

Now I am really trying to save every dollar, im checking out these sites. The banks big profits suck.

http://www.productreview.com.au/p/ofx.html a great friend a chemist put me onto this, but im yet to do first transaction. the key point is i am trying to save funds!

so for the next month cometriq is costing about 4500 euro 6k aud 30 days x $200 a day to stay away from germany

when ive been so blessed with supporters and your money donations, id show that im doing my best to save, ive been begging all the australian doctors for discounts and support, its surprising what begging achieves and smiling.

every dollar saved is like an extra day on the planet, its my old wheeling and dealing streak coming out.

my butts so skinny that sitting on chairs really painful, i am the crc super model now, thats for sure!

a big thanks for your help and ive made the following enquiries and research to ensure no complications importing.

https://www.tga.gov.au/publication/personal-import-scheme

i just called tga and was speaking with a very helpful lady sonya in the drug control section direct 02 62328740 call anytime

cometriq is not prescription which means its not sect 4 or 8 under poisons.

i am just trying to get 28 days, but is 3 months is maximum as more than this commercial.

we are getting further clarification from another area in tga, the drug control section, they will call me back.

that not script is needed australian doctor

that due to compassionate need i can use and benefit from this drug

that its ok to import it asap, so we should have no issues customs

Here is a letter about my need

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As terminally patient do i need permission from any body to import a drug thats helping me ?

This cannot be answered as a basic call to the tga, you get bounced around, and i made these notes while bouncing.

this is an example of why its easier to fly to germany then try and do this stuff in australia, even importing and understanding import export and tax stuff makes looking and assessing tumour biological pathways easy.

i have to write all these notes as i cannot remember as my mind looses power. i guess this is the cost of big brother keeping us safe or killing us with kindness, 

i explained i have 3 days supply left, of course stopping drug therapy after you start is suicide

The best date 50 shades and 100s of women and 3 guys

https://www.eventcinemas.com.au/Promotions/ChicksAtTheFlicksBATB

our 2 tickets came with chicks flicks promo bags, one for wife and one for daughter not present, she was baby sitting 11 year old keith, so i enjoyed the ambience of the event more than the movie but my wife and most of the ladies seem riveted by mr gray

we were the last couple in the cinema, a few soft kisses and i hobbled out like a cripple, the feet pain considerable. my wife was smiling and stunning and happy, all evening and we shared with the kids later this and that.

they got the taxi home from dancing, my son ordered online pizza, a good night was had by all.

but my mind flies to germany often, as i grow these tumours,my coghs worse, and abdoman full, now my toe blistered and im in a wheel chair

The 11 year old pusher and hero

they allow him to pickup the free wheelchair service, they say where to park in the massive complex to get the wheel chair and goto the specialised shoe shops. keith comes back truimphant with the wheel chair a big special, i jumped on board the love express, here is the 11 year old wheel chairing dad, see how good comes out of suffering. its difficult he pushes my bones up hill, but his determination and strength much like mine. oh and no answer from the health minister yet about him sitting the exams. after a few hours shoe fitting, he gently reminds me of his homework and dinner.

i have light weight thongs just purchased, but still more shopping to check shoes, but i say lets go now. we grab bbq chicken, salad and cherry tomatoes and thats dinner. the wifes been missing all day and dinner is just me and kids.

we talk over dinner about the chicken, my toes, school, boys, swimming carnivals, friends, easy relaxed conversation that rarely happens without me alas. i drag my daughter away from social media to real family, we talk more and my hearts breaking

you know why, i must find away to pull off another miracle, to buy my time.

my son gently says  I NEED MY FATHER and I smile and think that by the grace of God Ill find a way for another day!

He is a remarkable boy! so is my daughter, so is my wife.

My medical supplier home delivers my IV nacl water for infusions and collects my needles, our paths cross and I explain I cannot walk so well any more. I get an unfair amount of love and support from all those around me.

the funniest thing, the nasty negative onc on a good day, gave a me a referal to palliative care.

i asked receptionist, i need to see palliative doctor asap, oh the next appointment is late March

OH GREAT, I SMILE, the receptionist is my best friends sister, ill try and do better, ill call you

AS IF ILL LIVE THAT LONG OR ILL BE BACK GERMANY

but seriously 6 weeks, its a challenge, i must stay alive to make that appointment.

she called back, she says pete is this monday 9am ok

YOU SEE HOW BLESSED I AM, THAT FOR EVERY CHALLENGE GODS GIVES ME A SOLUTION

OH and how to get a teenage daughter to do her homework ?

My son and I started discussing the beatitudes, she raced away and I smiled! I said I loved them!

https://www.biblegateway.com/passage/?search=Matthew%205:1-12

The Beatitudes

another day on the planet, please pray that I get to see the education minister