More about my personalised translational oncology website

http://csn.cancer.org/node/259103#comment-1370913 the csn discussion from yesterday about translational medicine. stimulating public interest, i am so effective. 2 comments one on csn and one on colonchat, alas. noone is as excited as i am, i know its a good innovative idea when noone else sees its potential.

I am emailing dwight mckee and signing up for his journal.

http://www.cancerstrategiesjournal.com/ HERE IS THE JOURNAL, WELL WORTH THE INVESTMENT, IT MIGHT SAVE YOUR LIFE

it prime prupose is to document the patients who are following in my footsteps in a sufficiently professional way to engage interested clinicians and researchers. to show them the efforts we the paitent community are making. that we ourselves are testing the latest therapies on ourselves in an effort to survive. te latest of the lateat science.

the patients who i am helping are willing to document there experiences and results, i ted and quiet a few others not from CSN but whohave colorectal. 

the researchers want to see what happens in humans trying the latest antibodies.

maybe even conventional oncologists will look at it in awe and say these therapy combinations are clever and effective. 

basically terminally diagnosesd patients are not the cannn fodder of big pharma, we deserve the best and most innovative clinical management with the latest potential therapies.

the internet will allow these experiences to be shared, how public will depend, i suspect it will be prefered to keep some information confidenial and some public, I am aware of the scientists need for confidentiality despite there curiosity. I am to bring a bunch of willing patients to the rms of the medical communnity.

motthee theimmunotherapists and research scientists the not heard of removab or vogel and his techniques. now 600 scientists and doctors the worlds best know about my response, but they cannot explain it in detail. its success and recent failure specifically that is, but we have some details.

i mainly just wanted to share here the details of this journal, to bring to the patient communities awareness of this journal and the efforts of its supporters to ultimately promote science that is saving our life day by day.

maybe out of it will come a new style of clinical trial where stage 1 trials will have n=1

i guess i am changing audiences , or expanding audiences rather, given i cannot get answers from within the patient community i am go to the medical research community and immunotherapists. its exciting times we live in.

many of the ways i have mixed and matched these world leadingg therapies caught the attention of many doctors and scientists. so basically i want to engage with them, get their ideas for the few friends i have who are doing these therapies in germany.

i may be lucky enough to find a post doc willing to document these cases, in a best case style series of cases. our results will be interesting. the results will be compared retrospecively against patients treated with the standard of care.

only invited will sharing case histories, my goal is to have the best case hopefully mine documented in the cancer research journal, americas leading journal, i met the editor at this conference. it might easier for ptieents to demand therapies similar to mine, if its documented in a leading journal. if we have a few patients over 12 months published that would be enough.

of course i am torn between m survival efforts and these ideas, alas i am aware of my many limitations and strong points and need some help, but its a good idea , at least i figured i should register the domain name and spend 10euro and publish the beginning of what i think is a fantastic and innovative concept.

namely bridging super survivor patients experiences doing the latest intelligent combination of therapies, maybe we can higlight the rational of leaving the gold standard behind, the rational, the science and then the clincial benefit.

ie an inoperable friend a 40 something mother colorectal with late stage 4 inoperable, with divericulitis had a full personalised assessment, she has had 2 chemoembolisations with selectively targeted chemo agents, and one systemic chemo. this is 10 weeks post chemo, she has had a 30% reduction tumour volume and is now searching back home to have tumour removed, initially no surgoens would touch her, now we have german surgeons willing to operate, but due to funding she is renewing the search back home, with greatly improved chances of having this operation in her own medical system and can be close to her family.

she is also planning post operative chemo on residual disease and then transitioning to antibody therapies, then vaccine therapies. they are selling the house, they came within 3 days of talking to me and seeing my story. she is so far ahead of where she would have been after 6 months of peroperaivefolfox which is what conventional doctors offered. diviticulists is contraindicated for chemo, peritoneal infection. gettingtruypersonailised and effective medica care saves lives.

hoping highlighting the clinical benefits of these therapies beyond myself, will kick start the immunotherpy revolution. i have to go and get my infusions, i am back in the thick of therapies for this week, seeing the best way to solve cea=23.

did you read america best oncologists journal, i would be sincerely interested in anyones comments, i am trying to reach patients using these therapies or at least interested. i am also keen to leave alone in peace most patients doing the standard of care. what is truly amazing marie, is patients wanting what i want, those risk takers find me, the internet is fantastic. giveni have the same 24 hours a day as everyone else here, and that each day is precious given our few challenging cells. i am still not here posting about useful CAM, i note with some saisfaction and relief that CAM is a much more accepted discussion topic here, on colonclub and colonchat.

I wish us all the best health, i am praying for us all, everyday and pray that we find a way that the benefical set of therapies I have used is made available to broader patient communities.

hugs,

ps if you or anyone likes this material read his blog. 

pps one day we will wake up and the entire medical landscape will have changed. that day is coming soon my friends, when that day arrives we can all have more hope, alas to access that hope you will have to do more.

this is fr all my friends with breast or cervical cancer, or the lovelly woman i have met, especially my wife and ronaamd christin and sonya and victoria and kathrin and katherine and helen. Its really important get the gene tested, i suspect its heriditary. maybe if someone in your family had either of these cancers this gene test should be considered.

Big brother is bad, we should have freedom of choice, that said some vaccines are beneficial ie hpv i suspect, just ask anyone with cervical or head and neck. i suspect the link to rectal cancer will be frmly established soon. Likewise ask the parents of many autistic children, vaccines have been implicated from the parents i have met. Given our genetic and epigenetic variability our government saying this is safe, is futile. they cannot know. at best they say for a large percentage this is safe, say 99%, but the 1% well god help them. Our freedom of choice is paramount, on that Greg and I agree.