On the even of what maybe my finest achievement of CEA<0.5 ( God I hope this comes true ) I am effectively banned from sharing my story. I cannot mention therapies or doctors or results, I will be soliciting. I will never be the colorectal saviour, but at least I am saved so far.
The other amazing ironic point, is noone else has invested there own personal fortune, a big part of what I have access to, say about $700,000 aussie dollars and shared all the results, the lessons, the science, with a few suggestions. Oh and these therapies are proven to work on me, and i make no representation ever about them helping others. I have given those on CSN some ideas about the costs and issues, but effectively I have given them the benefit of my experience for free and it was rarely appreciated, but sharing it made me feel like I was fullfilling my duty to mankind.
I say its "Unethical" not to share, but that sharing is so complex when so many are fighting for there lives. The agonising decision about what to say, how to say it, and to find the spelling and grammar checker (not ever found them ) i am released from. So in a way this is the biggest favour.
As I transition into paid employment, I will be able to devout my experience and energies towards patients who seek these therapies. So its ironic about the timing but a bit tragic about the flow of information to the broader colorectal community.
I am dissappointed and releaved at not being permitted to post about my therapy success and failure, which I did out of completeness and my sense of duty. As I owe my life to csn and the members of the colorectal community. I think I posted about my CEA climbing despite GOLEIC, I posted about the therapy failures and success.
Its sad to be singled out, but I guess thats what happens when you get outstanding successful results, far beyond anything conventional medicine can achieve. Its raises some interesting questions, but I have done my best to openly share the truth of my journey, so that anyone who wants to try immunotherapies and alternatives that have worked and failed.
But heck my dream to share a little bit of hope and my success and a world with so much suffering. I have disclaimers all over this blog.
I guess the conventionals are so threatened by these therapy successes, they want to believe all alternatives are snake oil. well not all are. and the damaging effects of chemo.
For all my CSN friends, i wish you all the best. For the record I have put at least twice the effort to look after the wife and kids as I have into surviving my colorectal cancer, and this blog only gives you a glipse of my efforts.
My wife has all the property I built up and will not sell anything, if I died today she will have LOTS but she values her belongings more than me. I have invested my life insurance and retirement savings into saving my life, with no regrets.
The silver lining with my impetus to fund my life style and medical treatments here is that the therapy mixes have a huge commercial value, that now I will seek to capitalise on, just like all the scientists sitting on patents that go nowhere due to greed.
http://csn.cancer.org/termsandconditions
No User shall advise other Users about medical care or attempt to influence their medical care decisions. Members are encouraged to share their own medical experiences, but medical advice to others is strictly prohibited, regardless of a Member's medical education, credentials, or experience. The purpose of the Cancer Survivors Network is to provide a peer to peer support service; it brings people together who are personally affected by cancer but is not a medical site. While Users are encouraged to share their own personal experiences and practical tips they learned to cope with cancer, they must refrain from dispensing advice to another person about specific treatments, physicians and other care providers and treatment facilities they should or should not choose. Further, Users must not pass judgement on, disparage or directly challenge the decisions and opinions of others. Users are to be respectful of others.
ADMIN MESSAGE ABOUT MY EXISTENCE ON CSN -the juicy bit, I give up!
if you personally benefit from referrals to particular healthcare providers, services or products, kindly refrain from mentioning those providers, services, or products - even if you are using, or have used, them successfully yourself. Otherwise, it will be considered solicitation. Please be mindful that members may not attempt to influence another member's decisions about their health care. Please take care that statements about your medical care are not misleading or misrepresented.
OF COURSE I AGREED, WHO NEEDS THE STRESS. FOR THE RECORD I HAVE NOT GOTTEN A DOLLAR FROM ANY DOCTOR ANYWHERE FOR ANY REFERALS, MAYBE THIS IS AMBIGOUS. I TOOK REFERALS TO BE MY PERSONAL BENEFIT, IE I LIVE BECAUSE OF THERE MEDICAL CARE, BUT I DO BENEFIT, I FEEL A HUGE EMOTIONAL PAYBACK THAT FAR MORE VALUABLE THAN MONEY.
I have been criticised about so much on CSN, one final comment, and that is I did not provide support. I dont believe I can offer support, when everyone knows I believe that systemic chemo is
killing them cycle by cycle and reducing whatever chance they have of an immune system response. So even when I am silent, I am criticised, as only coming for support but not giving any.
I considered "Hope" the best support I could provide.
I will never get to post 4000, but i guess that the way life is meant to be.
The journey continues ............................................................................
The other amazing ironic point, is noone else has invested there own personal fortune, a big part of what I have access to, say about $700,000 aussie dollars and shared all the results, the lessons, the science, with a few suggestions. Oh and these therapies are proven to work on me, and i make no representation ever about them helping others. I have given those on CSN some ideas about the costs and issues, but effectively I have given them the benefit of my experience for free and it was rarely appreciated, but sharing it made me feel like I was fullfilling my duty to mankind.
I say its "Unethical" not to share, but that sharing is so complex when so many are fighting for there lives. The agonising decision about what to say, how to say it, and to find the spelling and grammar checker (not ever found them ) i am released from. So in a way this is the biggest favour.
As I transition into paid employment, I will be able to devout my experience and energies towards patients who seek these therapies. So its ironic about the timing but a bit tragic about the flow of information to the broader colorectal community.
I am dissappointed and releaved at not being permitted to post about my therapy success and failure, which I did out of completeness and my sense of duty. As I owe my life to csn and the members of the colorectal community. I think I posted about my CEA climbing despite GOLEIC, I posted about the therapy failures and success.
Its sad to be singled out, but I guess thats what happens when you get outstanding successful results, far beyond anything conventional medicine can achieve. Its raises some interesting questions, but I have done my best to openly share the truth of my journey, so that anyone who wants to try immunotherapies and alternatives that have worked and failed.
But heck my dream to share a little bit of hope and my success and a world with so much suffering. I have disclaimers all over this blog.
I guess the conventionals are so threatened by these therapy successes, they want to believe all alternatives are snake oil. well not all are. and the damaging effects of chemo.
For all my CSN friends, i wish you all the best. For the record I have put at least twice the effort to look after the wife and kids as I have into surviving my colorectal cancer, and this blog only gives you a glipse of my efforts.
My wife has all the property I built up and will not sell anything, if I died today she will have LOTS but she values her belongings more than me. I have invested my life insurance and retirement savings into saving my life, with no regrets.
The silver lining with my impetus to fund my life style and medical treatments here is that the therapy mixes have a huge commercial value, that now I will seek to capitalise on, just like all the scientists sitting on patents that go nowhere due to greed.
http://csn.cancer.org/termsandconditions
No User shall advise other Users about medical care or attempt to influence their medical care decisions. Members are encouraged to share their own medical experiences, but medical advice to others is strictly prohibited, regardless of a Member's medical education, credentials, or experience. The purpose of the Cancer Survivors Network is to provide a peer to peer support service; it brings people together who are personally affected by cancer but is not a medical site. While Users are encouraged to share their own personal experiences and practical tips they learned to cope with cancer, they must refrain from dispensing advice to another person about specific treatments, physicians and other care providers and treatment facilities they should or should not choose. Further, Users must not pass judgement on, disparage or directly challenge the decisions and opinions of others. Users are to be respectful of others.
ADMIN MESSAGE ABOUT MY EXISTENCE ON CSN -the juicy bit, I give up!
if you personally benefit from referrals to particular healthcare providers, services or products, kindly refrain from mentioning those providers, services, or products - even if you are using, or have used, them successfully yourself. Otherwise, it will be considered solicitation. Please be mindful that members may not attempt to influence another member's decisions about their health care. Please take care that statements about your medical care are not misleading or misrepresented.
OF COURSE I AGREED, WHO NEEDS THE STRESS. FOR THE RECORD I HAVE NOT GOTTEN A DOLLAR FROM ANY DOCTOR ANYWHERE FOR ANY REFERALS, MAYBE THIS IS AMBIGOUS. I TOOK REFERALS TO BE MY PERSONAL BENEFIT, IE I LIVE BECAUSE OF THERE MEDICAL CARE, BUT I DO BENEFIT, I FEEL A HUGE EMOTIONAL PAYBACK THAT FAR MORE VALUABLE THAN MONEY.
I have been criticised about so much on CSN, one final comment, and that is I did not provide support. I dont believe I can offer support, when everyone knows I believe that systemic chemo is
killing them cycle by cycle and reducing whatever chance they have of an immune system response. So even when I am silent, I am criticised, as only coming for support but not giving any.
I considered "Hope" the best support I could provide.
I will never get to post 4000, but i guess that the way life is meant to be.
The journey continues ............................................................................