So same lab, same threshold my cea was 39 yesterdaqy up 11 in 15 days, ca199 259 up from 189 over same period. This is about 6 weeks post german lung rfa, and 5 weeks for the dc vaccine.
I suspect the peak of the immune cycle has occured, time to switch to cytotoxic therapies, seeking dr opinions. I have not got todays bloods, but got numbers over the phone. So idont know about other issues re thyroid and white cell counts, all critical issues. but the net if progression at home while on a minimal program. mildketosis and mild supplements and mild infusions.
withhindsight i could have tried alot harder core on supplements and diet and infusions. this rise while very significant represents a wonderful clinical opportunity for me, my doctors and you to contemplate cancer and its trickiness in those with minimal residual disease. I am pretty sure nothing will show up in scans, i will defer scans pet, mri until before return germany so that prof vogel may have a clearly defined target. yes i will be relying on tace/ipt/dc vaccine trilogy and maybe even some pdt. Of course i need targets.
I had the most wonderful day with wife, I held her hand! and was not punched! The daughter is sick so she rested at home. tomorrow is halloween, and we cancelled a party to go on a train ride to melbourne, 11 hours over night to see my mum, likely for the last time. The kids need to see there grandmother and say good bye while she is capable. On sunday morning we will all goto mass together. then the train home sunday night and school monday for the kids and office work for me.
I also had my best keytone reading today 2.0, i did feel very tired in the afternoon after a weights traininbg session. I have lost alot of strength. i will do another round next week. I need to be in the ketogenic zone as per seyfried, which is keytones > glucose, so along way to go, or maybe just a day.
I have prayed and believed I was going into a long and easy remission, where I can take my focus away from survival and focus on family and god. Alas I have more to learn about my own biology, so I am grateful for the opportunity.
I think its hypocritical to only thank god for the good things in life, its like cherry picking the best seafood out of the buffet ( I used to do that, but not anymore ), so while I sincerely would have loved saying rock solid remission and blood markers normal, I cannot. But I do share my optimism and hope that I will deal with this challenge as effectively as all the others. maybe heavy ketosis and more infusions is just what the doctor ordered.
give these tumours an inch and they take a mile. its just the way I used to live, the law of karma is real.
for the next two weeks HEAVY KETOSIS, SUPER LOW GLUCOSE, BOOSTING XELODA TO 500 mg daily for tregs and 2000mg on infusion days, trying to do these now twice per week. Also doubling supplements/off labels. I have very secretly been cutting these back and trying to get as much of my vit and minerals from diet. the next few weeks more important than the last.
I felt really tired this afternoon, maybe it was the result and the ongoing challenge this illness presents to me, the kids are more focused on seeing grandmother than my challenging news, which they take in there stride!
My prayer as always God give me wisdom and strength and guide me out of the cancer maze and thank you for this life!
Its not over till the fat lady sings!
rereadinghbot and kd papers, the discussion gives me hope if it helps the mice, then maybe a RAT?
I suspect the peak of the immune cycle has occured, time to switch to cytotoxic therapies, seeking dr opinions. I have not got todays bloods, but got numbers over the phone. So idont know about other issues re thyroid and white cell counts, all critical issues. but the net if progression at home while on a minimal program. mildketosis and mild supplements and mild infusions.
withhindsight i could have tried alot harder core on supplements and diet and infusions. this rise while very significant represents a wonderful clinical opportunity for me, my doctors and you to contemplate cancer and its trickiness in those with minimal residual disease. I am pretty sure nothing will show up in scans, i will defer scans pet, mri until before return germany so that prof vogel may have a clearly defined target. yes i will be relying on tace/ipt/dc vaccine trilogy and maybe even some pdt. Of course i need targets.
I had the most wonderful day with wife, I held her hand! and was not punched! The daughter is sick so she rested at home. tomorrow is halloween, and we cancelled a party to go on a train ride to melbourne, 11 hours over night to see my mum, likely for the last time. The kids need to see there grandmother and say good bye while she is capable. On sunday morning we will all goto mass together. then the train home sunday night and school monday for the kids and office work for me.
I also had my best keytone reading today 2.0, i did feel very tired in the afternoon after a weights traininbg session. I have lost alot of strength. i will do another round next week. I need to be in the ketogenic zone as per seyfried, which is keytones > glucose, so along way to go, or maybe just a day.
I have prayed and believed I was going into a long and easy remission, where I can take my focus away from survival and focus on family and god. Alas I have more to learn about my own biology, so I am grateful for the opportunity.
I think its hypocritical to only thank god for the good things in life, its like cherry picking the best seafood out of the buffet ( I used to do that, but not anymore ), so while I sincerely would have loved saying rock solid remission and blood markers normal, I cannot. But I do share my optimism and hope that I will deal with this challenge as effectively as all the others. maybe heavy ketosis and more infusions is just what the doctor ordered.
give these tumours an inch and they take a mile. its just the way I used to live, the law of karma is real.
for the next two weeks HEAVY KETOSIS, SUPER LOW GLUCOSE, BOOSTING XELODA TO 500 mg daily for tregs and 2000mg on infusion days, trying to do these now twice per week. Also doubling supplements/off labels. I have very secretly been cutting these back and trying to get as much of my vit and minerals from diet. the next few weeks more important than the last.
I felt really tired this afternoon, maybe it was the result and the ongoing challenge this illness presents to me, the kids are more focused on seeing grandmother than my challenging news, which they take in there stride!
My prayer as always God give me wisdom and strength and guide me out of the cancer maze and thank you for this life!
Its not over till the fat lady sings!
rereadinghbot and kd papers, the discussion gives me hope if it helps the mice, then maybe a RAT?