back into mild ketosis 0.8 today and glucose a high 6.6 ouch!!, i need more exercise!
http://cancer.stanford.edu/research/immunology/dendritic.html its commonsense really, but not that common yet! I am blessed and noone listens, but you my few kind and patient readers and friends.
I have to thank my wonderful friend Greg, who really helped me get so much of the mto documentation together, amongst helping in so many other ways. THANKYOU!
Maybe slipping over on the rocks at iluka was Gods way of saying, leave the smart phone behind, have a simply quiet healing life? This I am seriously contemplating.
So I am sharing the draft mto failure letters and reasons, so that if I have encouraged anyone with hope that these german therapies would be covered, or likely to even be covered, well they are not! that is crystal clear. Of course I will not give up, but asking in advance likely futile , asking in retrospect when I feel I have been remarkably successful, so do all my doctors, well futile as well.
I share my experience for what it is, the good and the bad. PLEASE make your own conclusions and goodluck with your treatments, whatever you decide from full blown systemic chemo and radiotherapy to full blown alternative and everything in between.
Of course I am naturally biased to the therapies that have and continue to work for me, that have the potential to work for you as well I firmly believe. In my blog I share my enthusiasm for the science and therapies that I use, that work for me.
We are entering a brave new world of personalised medicine, where its increasingly difficult for government and its extension, the medical system to cope with the rate of change the internet brings with the potential of lifestyle therapies, supplements and international treatment options.
At least we all have options and choices, and we are free to pursue them and share our results and observations and conclusions. Maybe I share with too much joy, its just with every positive result, well I feel this amazing bliss and gratitude. Why me, always why me and not my other friends. I know I am trying a unique set of therapies. I do feel privileged to have the resources to try these therapies.
According to the mtop department "AS NONE OF THE CRITERIA FOR MTOP PROGRAMME FUNDING HAVE BEEN MET, THIS APPLICATION IS UNSUCCESSFUL."
I did not fail by missing out on one criteria, but all of them. My doctors and there staff here and in germany provided reports and records and letters of support. The extent of the FAILURE means I really need to question the time and effort I devote to further mto activities, especially as an emergency source of alternative funds for ongoing treatment, I suspect the latest met has grown enough to be a candidate for some form of targetted treatment. Its clear the excellent dc vaccine antibody response, not enough. For me the liekly reason is tumour immune suppression in the microtumour environment.
So the pet and ct and mri and ultrasounds to come, well they will reveal so much. if i have just one site of disease. Well that to me proves again the dc vaccine has delivered proven coverage against metastatic spread to new organs and sites of disease. Even while my wonderful immune system has been fighting hep a. there is so much to learn and appreciate each and everyday when you fight for your life using immunotherapies and metabolic cancer approaches.
It would be ironic if by devoting heaps of energy to this appeal before the decision is finalised that I die or I miss the the clinical opportunity to deal with what maybe the latest metastasis causing the rising tumour markers. I view the rising marker as a wonderful guide to where treatment is needed. While meditating this morning I realised the hidden value of trip 7 was that cea crashed from 42 to 16 in a week, indicating clearly that the tace,ipt,pdt was remarkably effective, over 3 days.
What would the results have been if I had continued ongoing daily oncothermia, infusions to capitalise of the excellent tumour destruction ? I am pretty confident the trend would have continued down like the other trips. But look how much we learn from my varied attempts and the responses of the different organ systems with metastasis in them.
the strategic error was not following through, but it was Christmas, mothers imminent death, lack of funds and yes the idea of testing 10 days, say 30Kaud of therapies and what benefit. What result in Australia.
So thanks again God To The wonderful health I feel, despite a little tiredness due to the hep a I think.
From Ash's book, some legal thoughts
Maybe the scans this week will finally show an operable metastasis, aint been one in the last 3 years, unless we count the 4 rfa's so far. Getting a fresh tumour sample interesting, but not essential as discussed years ago regarding antigen specificity.
I wonder if Medical Oncology Group of Australia MOGA got all the clinical information I sent to MTOP, did they review in detail all of it, it seems.
http://www.medicaltourism.com/blog/patient-experience-management-is-the-key-to-encouraging-medical-tourism/
http://www.aat.gov.au/
http://www.ag.gov.au/LegalSystem/Legalaidprogrammes/Commonwealthlegalfinancialassistance/Documents/LegalFinancialAssistanceInformationSheet.pdf
http://www.ncbi.nlm.nih.gov/pubmed/24373545
Non-Edible Plants as an Attractive Source of Compounds with Chemopreventive Potential
Cannabidiol (Fig. 1F) is found in Cannabis sativa and has a chemopreventive effect in cancer.20 First, cannabidiol induces fragmentation of caspase-3, which leads to apoptosis of colon cancer cells. Cannabidiol can also down-regulate the expression of Akt, which functions in cell growth, migration and differentiation. Finally, cannabidiol has an anti-inflammatory effect on gut cells by down-regulating inducible nitric oxide synthase (iNOS) but has no anti-inflammatory effect on colon cancer cells.
http://cancer.stanford.edu/research/immunology/dendritic.html its commonsense really, but not that common yet! I am blessed and noone listens, but you my few kind and patient readers and friends.
I have to thank my wonderful friend Greg, who really helped me get so much of the mto documentation together, amongst helping in so many other ways. THANKYOU!
Maybe slipping over on the rocks at iluka was Gods way of saying, leave the smart phone behind, have a simply quiet healing life? This I am seriously contemplating.
So I am sharing the draft mto failure letters and reasons, so that if I have encouraged anyone with hope that these german therapies would be covered, or likely to even be covered, well they are not! that is crystal clear. Of course I will not give up, but asking in advance likely futile , asking in retrospect when I feel I have been remarkably successful, so do all my doctors, well futile as well.
I share my experience for what it is, the good and the bad. PLEASE make your own conclusions and goodluck with your treatments, whatever you decide from full blown systemic chemo and radiotherapy to full blown alternative and everything in between.
Of course I am naturally biased to the therapies that have and continue to work for me, that have the potential to work for you as well I firmly believe. In my blog I share my enthusiasm for the science and therapies that I use, that work for me.
We are entering a brave new world of personalised medicine, where its increasingly difficult for government and its extension, the medical system to cope with the rate of change the internet brings with the potential of lifestyle therapies, supplements and international treatment options.
At least we all have options and choices, and we are free to pursue them and share our results and observations and conclusions. Maybe I share with too much joy, its just with every positive result, well I feel this amazing bliss and gratitude. Why me, always why me and not my other friends. I know I am trying a unique set of therapies. I do feel privileged to have the resources to try these therapies.
MTO THOUGHTS AND APPROACH ABOUT THE APPEAL
MTO Failed draft notice and my comments see this folder for the letters and the fail notice.
According to the mtop department "AS NONE OF THE CRITERIA FOR MTOP PROGRAMME FUNDING HAVE BEEN MET, THIS APPLICATION IS UNSUCCESSFUL."
I did not fail by missing out on one criteria, but all of them. My doctors and there staff here and in germany provided reports and records and letters of support. The extent of the FAILURE means I really need to question the time and effort I devote to further mto activities, especially as an emergency source of alternative funds for ongoing treatment, I suspect the latest met has grown enough to be a candidate for some form of targetted treatment. Its clear the excellent dc vaccine antibody response, not enough. For me the liekly reason is tumour immune suppression in the microtumour environment.
So the pet and ct and mri and ultrasounds to come, well they will reveal so much. if i have just one site of disease. Well that to me proves again the dc vaccine has delivered proven coverage against metastatic spread to new organs and sites of disease. Even while my wonderful immune system has been fighting hep a. there is so much to learn and appreciate each and everyday when you fight for your life using immunotherapies and metabolic cancer approaches.
It would be ironic if by devoting heaps of energy to this appeal before the decision is finalised that I die or I miss the the clinical opportunity to deal with what maybe the latest metastasis causing the rising tumour markers. I view the rising marker as a wonderful guide to where treatment is needed. While meditating this morning I realised the hidden value of trip 7 was that cea crashed from 42 to 16 in a week, indicating clearly that the tace,ipt,pdt was remarkably effective, over 3 days.
What would the results have been if I had continued ongoing daily oncothermia, infusions to capitalise of the excellent tumour destruction ? I am pretty confident the trend would have continued down like the other trips. But look how much we learn from my varied attempts and the responses of the different organ systems with metastasis in them.
the strategic error was not following through, but it was Christmas, mothers imminent death, lack of funds and yes the idea of testing 10 days, say 30Kaud of therapies and what benefit. What result in Australia.
So thanks again God To The wonderful health I feel, despite a little tiredness due to the hep a I think.
From Ash's book, some legal thoughts
Maybe the scans this week will finally show an operable metastasis, aint been one in the last 3 years, unless we count the 4 rfa's so far. Getting a fresh tumour sample interesting, but not essential as discussed years ago regarding antigen specificity.
I wonder if Medical Oncology Group of Australia MOGA got all the clinical information I sent to MTOP, did they review in detail all of it, it seems.
http://www.medicaltourism.com/blog/patient-experience-management-is-the-key-to-encouraging-medical-tourism/
http://www.aat.gov.au/
http://www.ag.gov.au/LegalSystem/Legalaidprogrammes/Commonwealthlegalfinancialassistance/Documents/LegalFinancialAssistanceInformationSheet.pdf
http://www.ncbi.nlm.nih.gov/pubmed/24373545
Non-Edible Plants as an Attractive Source of Compounds with Chemopreventive Potential
Cannabidiol (Fig. 1F) is found in Cannabis sativa and has a chemopreventive effect in cancer.20 First, cannabidiol induces fragmentation of caspase-3, which leads to apoptosis of colon cancer cells. Cannabidiol can also down-regulate the expression of Akt, which functions in cell growth, migration and differentiation. Finally, cannabidiol has an anti-inflammatory effect on gut cells by down-regulating inducible nitric oxide synthase (iNOS) but has no anti-inflammatory effect on colon cancer cells.