If i hold joy to tight she slips between my fingers.
To lite and she flys away
Just the perfect pressure and we grasp our dreams.
As i gaze at my hand i see my dream.
I pray for wisdom to vividly continue to see my miracle. Its shines as brilliantly as the sun in my heart.
Sharing our success, our joy happens here in our hearts.
The cimt conference in on early may and i have something to say. Maybe this year.
Believe it or not yesterday I just kissed my oncologist hand and said that's unbelievable as you know my cancer marker a couple of months ago probably only 6 weeks ago was 571 and this is the most dramatic fall I've ever seen
So I'm contemplating many many options I also did a pet scan yesterday and it clearly showed one small active liver lesion left and that can be a belated and that's been offered in Germany already
The lung lesions a little more active.
But the key point of this very quick blog is to share my joy and happiness and appreciation of this result and what it represents in terms of stage 4 cancer fighting survival strategy and that I I think clearly going with something new and untested in terms of the latter laparoscopic resection at this point anyway have you ordered great success I think the post management considerations to lock in that success and cover any risk is what's driving me to go back to Germany next Monday night which was already planned and booked
But I have the other option of staying in Sydney doing comprehensive in fusions and attempting to lock in and stabilize the current result buildup financial reserves save money am and effectively defer treatment until I got a sign of escalating markers alright entered in my best we have at home immunotherapy tumour management
I haven't adequately expressed my gratitude and I suspect the gratitude that I feel is so profound and deep that it is inexpressible but I am obliged to try much the same way as I've tried to save my life
This result is the most joy is in 6 years of fighting this disease so now I have many wonderful choices and I will take my time to consider them and email my doctors I've included a copy of the pet scan report from yesterday
YESTERDAY PETSCAN REPORT
CONFIDENTIAL
Patient's Name: Peter Trayhurn
MRN: 1258812
DoB: 25/8/1966
Referring Dr: Bell, DR
Study: PET-CT FDG Whole Body Study
Date of Study: 20/4/2016
Report:
The patient was scanned 58 minutes after the i.v.i of 336 MBq of FDG with their arms at their side, from head to mid thighs on a 128-slice mCT scanner with high definition reconstruction and time-of-flight technology. The current study was compared to the previous study from August 2015.
There are no large mass lesions in the brain and there are no abnormalities in the skull or the scalp.
There has been surgery in the interval since the last scan and there are now surgical clips and also increased glucose metabolism at the resection margin in segment two of the left lobe of the liver directly beneath the right ventricle; peak metabolism in this location is 9.4 but I think this reflects postsurgical inflammation. The abnormality which was seen previously beneath the left hemidiaphragm and adjacent to the stomach is no longer evident. There is however a small region of increased glucose metabolism which corresponds to a region of hypodensity in segment seven of the right lobe of the liver just beneath the dome of the right hemidiaphragm; it extends over 9 mm in diameter and peak SUV is 6.8 and it is consistent with a site of active disease. Alternatively it could reflect inflammation but there is no obvious evidence for surgery in this location. There are no other definite focal abnormalities in the peritoneum to indicate other sites of disease but there is a ra
dio opaque catheter in the left upper quadrant of the abdomen which is new. Paracaval, paraaortic and pelvic lymph nodes are clear. There are no abnormalities in the adrenal glands. Inguinal and femoral lymph nodes are clear. Above the diaphragm, the rounded nodule seen laterally in the left upper lobe of the lung which previously measured 2 mm in diameter now measures 6 mm in diameter and it is more glucose avid, SUV is 3.0; where there was a linear 4 mm diameter nodule in the right upper lobe of the lung lateral to the mediastinum this nodule now measures 7 mm in diameter and it is also more glucose avid and apparent with an SUV of 4.1 compared to 1.4 on the last study; the 4 mm diameter nodule in the apical segment of the right lower lobe just under fissure has increased in size and now measures 8 mm in diameter and it is also glucose avid at 2.3. The 7 mm diameter nodule in the left lower lobe posteriorly now measures 8 mm in diameter and SUV has increased to 2.0; there
is a new nodule located more posteriorly in the left lower l!
obe close to the pleura diameter of 6 mm which is mildly glucose avid at 2.1 and that there are smaller nodules in the left lower lobe laterally and the right upper lobe which have developed in the interval since the last scan. There are no abnormalities in hilar or mediastinal nodes or lymph nodes at the base of the neck and the bony skeleton is clear.
Conclusions:
There are postsurgical changes at the resection margin of the left lobe of the liver and the epigastrium; the mass seen in the left upper quadrant of the abdomen on the previous scan adjacent to the stomach is no longer evident but there is a new lesion in segment seven consistent with a site of active disease. The nodules seen in the lung fields on the previous scan have increased in size and now they are evident are small regions of increased metabolism and there are also new nodules in both lung fields.
Prof MJ Fulham and Dr G Yeo
20/4/2016
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Dear DR
A big thank you to you both!
I am very very grateful for your care.
Could i get liver abaltion here ?
Would i be able to have newcastle virus disease and gcmaf injected near adjacent abalation site to maximise immune reponse?
Or does lung disease preclude all treatments but chemo.
All comments and help appreciate.
I know your busy and even a quick call welcome. Ill leave anzac day if no local abalation possible.
Cheers,
Pete
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